cystic fibrosis

Family-building and parenting considerations for people with cystic fibrosis

Dr. Traci Kazmerski and her team looked at the family-building and parenting considerations for people with cystic fibrosis (CF), including:

  • Reproductive goals
  • Family-building concerns faced by people with CF including fertility, pregnancy, and alternative paths to parenthood
  • The impact of parenthood on mental and physical health
  • Important future research

Clinician attitudes and practices on pregnancy planning and care in cystic fibrosis

Dr. Traci Kazmerski found in her recent study that more people with cystic fibrosis (CF) pursue pregnancy in the era of cystic fibrosis transmembrane conductance regulator (CFTR) modulators and that CF providers should be initiating discussions surrounding pregnancy early and often.


Read more: https://www.sciencedirect.com/science/article/pii/S1569199322006014?via%3Dihub

Men’s Experiences and Preferences Related to Cystic Fibrosis Sexual and Reproductive Health Care

Men with cystic fibrosis (CF) acknowledge the need for comprehensive CF care that includes sexual and reproductive health (SRH). Men with CF value early, stepwise, provider-initiated SRH conversations, especially around infertility concerns, counseling and care, increased life expectancy, and the need for peer support.

Read more: https://www.sciencedirect.com/science/article/pii/S1569199322000340

Engaging Stakeholders in the Development of a Reproductive Goals Decision AID for Women with Cystic Fibrosis

Utilizing meaningful stakeholder contributions, Dr. Traci Kazmerski and her team developed MyVoice:CF, a novel web-based decision aid to help women with CF engage in shared decision-making regarding their reproductive goals.

Read more: https://journals.sagepub.com/doi/10.1177/23743735221077527

 

Provider Attitudes and Perspectives on Male Health in Cystic Fibrosis

After interviewing 20 providers about their attitudes and perspectives related to male health and cystic fibrosis (CF), Dr. Traci Kazmerski and her team found that a lack of standardization and research creates barriers to optimal sexual and reproductive health care.

Read more about this study here: pubmed.ncbi.nlm.nih.gov/34998704/