Most males with cystic fibrosis (CF) are infertile but with CF transmembrane conductance regulator modulator-conferred benefits, more are utilizing assisted reproductive technologies. However, no human data exists and there are many unknowns.
https://pubmed.ncbi.nlm.nih.gov/37953181/
cystic fibrosis
Clinician perspectives and practices related to sexual and reproductive care provision for males with cystic fibrosis
Cystic fibrosis (CF) clinicians perceive sexual and reproductive health (SRH) for men with CF as important but report low SRH discussions. With a total of 297 clinicians completing Dr. Kazmerski's survey (41% pediatric, 36% adult, 23% both; 27% physicians, 24% social workers, 11% nurses, 41% other), nearly all (98%) believed the CF team had a role in SRH care with 75 % believing they should be primarily responsible.
https://pubmed.ncbi.nlm.nih.gov/37953183/
Factors associated with pubertal growth outcomes in cystic fibrosis: Early Growth and Puberty in CF
In a recent study, Dr. Traci Kazmerski and her team found that early height, but not early weight-for-length/body mass index trajectories, may be associated with pubertal growth outcomes. Cystic fibrosis transmembrane conductance regulator modulator therapy shows the potential to improve pubertal growth outcomes, but further research is necessary.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/37981481/
Feasibility Testing of a Web-Based Reproductive Decision Support Tool for Cystic Fibrosis
Dr. Kazmerski , Olivia Stransky, Catherine Wright, Dr. Birru Talabi, Dr. Callegari, Dr. Chang, Dr. Miller, Ashley Deal, Raelynn O'Leary, and Dr. Borrero conducted a study on our femtech tool MyVoice:CF showing that the tool increases self-efficacy and reproductive health communication for those with cystic fibrosis.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/37833123/
Partner perspectives on women's sexual and reproductive healthcare in cystic fibrosis
Olivia Stransky, Catherine Wright, and Dr. Traci Kazmeski found that partners report gaps in sexual and reproductive health care and counseling despite the majority wanting to discuss sexual and reproductive health concerns with their partner's cystic fibrosis team.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/35970694/
Clinician attitudes and practices on pregnancy planning and care in cystic fibrosis
Dr. Traci Kazmerski and her team looked at clinician attitudes and practices on pregnancy planning and care in cystic fibrosis (CF) and found that:
Sexual and reproductive health experiences and care of adult women with cystic fibrosis
In their recent study, Dr. Traci Kazmerski and Olivia Stransky found that women with cystic fibrosis (CF) have significantly different sexual and reproductive health (SRH) experiences than their non-CF peers. They report suboptimal SRH care compared to their preferences highlighting an urgent need to encourage SRH counseling/care in the CF model.
Read more about their study here: https://pubmed.ncbi.nlm.nih.gov/36210323/
Finding ways to work parenting into cystic fibrosis
As more people with cystic fibrosis (CF) consider their reproductive futures, the impact of parenthood on CF must be better understood. Olivia Stransky and Dr. Traci Kazmerski found that parents with CF identified unique challenges to their existence as both parents and patients as well as ways in which parenting has enhanced their lives.
Read more about their study here: https://pubmed.ncbi.nlm.nih.gov/36808716/
Menopause in people with cystic fibrosis
Olivia Stransky, Dr. Thomas, and Dr. Kazmerski found that people with #cysticfibrosis (CF) experience a variety of #menopausal symptoms and report a worsening of their CF symptoms after #menopause, suggesting an interplay between #sex hormones and CF.
Read more from their study here: https://pubmed.ncbi.nlm.nih.gov/36720079/
Parenthood impacts short-term health outcomes in people with cystic fibrosis
There is a major knowledge gap regarding the health impacts of parenthood in people with cystic fibrosis (CF). Using UK CF registry data to evaluate parenthood's impact on health outcomes, Dr. Traci Kazmerski and her team found that parenthood adversely impacts short-term health outcomes for people with CF. To better understand the impact of the widespread use CFTR modulators, longer-term, prospective parenthood studies are needed.