Parents/guardians of adolescents and young adults with epilepsy and intellectual disabilities prefer more frequent, neurologist-initiated, comprehensive conversations surrounding sexual and reproductive health, particularly emphasizing menstruation and sexual abuse recognition/prevention.
Most males with cystic fibrosis (CF) are infertile but with CF transmembrane conductance regulator modulator-conferred benefits, more are utilizing assisted reproductive technologies. However, no human data exists and there are many unknowns.
https://pubmed.ncbi.nlm.nih.gov/37953181/
Cystic fibrosis (CF) clinicians perceive sexual and reproductive health (SRH) for men with CF as important but report low SRH discussions. With a total of 297 clinicians completing Dr. Kazmerski's survey (41% pediatric, 36% adult, 23% both; 27% physicians, 24% social workers, 11% nurses, 41% other), nearly all (98%) believed the CF team had a role in SRH care with 75 % believing they should be primarily responsible.
https://pubmed.ncbi.nlm.nih.gov/37953183/
Dr. Traci Kazmerski and her team co-developed with patients, parents or caregivers, and multi-disciplinary healthcare providers who care for this population an online patient education materials about epilepsy for adolescent and young adult females with epilepsy. This work is a structured and reproducible methodology that could inform future educational intervention development in epilepsy.
In a recent study, Dr. Traci Kazmerski and her team found that early height, but not early weight-for-length/body mass index trajectories, may be associated with pubertal growth outcomes. Cystic fibrosis transmembrane conductance regulator modulator therapy shows the potential to improve pubertal growth outcomes, but further research is necessary.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/37981481/
Dr. Kazmerski , Olivia Stransky, Catherine Wright, Dr. Birru Talabi, Dr. Callegari, Dr. Chang, Dr. Miller, Ashley Deal, Raelynn O'Leary, and Dr. Borrero conducted a study on our femtech tool MyVoice:CF showing that the tool increases self-efficacy and reproductive health communication for those with cystic fibrosis.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/37833123/
Drs. Laura Kirkpatrick and Traci Kazmerski conducted a retrospective textual analysis of sexual and reproductive health (SRH) counseling clinical notes for adolescent and young adult people with epilepsy of gestational capacity. They found that child neurologists counsel on SRH topics less frequently than recommended according to the The American Academy of Neurology.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/37348408/
Olivia Stransky, Catherine Wright, and Dr. Traci Kazmeski found that partners report gaps in sexual and reproductive health care and counseling despite the majority wanting to discuss sexual and reproductive health concerns with their partner's cystic fibrosis team.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/35970694/
Dr. Traci Kazmerski and her team looked at clinician attitudes and practices on pregnancy planning and care in cystic fibrosis (CF) and found that:
In their recent study, Dr. Traci Kazmerski and Olivia Stransky found that women with cystic fibrosis (CF) have significantly different sexual and reproductive health (SRH) experiences than their non-CF peers. They report suboptimal SRH care compared to their preferences highlighting an urgent need to encourage SRH counseling/care in the CF model.
Read more about their study here: https://pubmed.ncbi.nlm.nih.gov/36210323/
