Sexual and reproductive health is an important and emerging area in cystic fibrosis (CF) and thoughtful consideration of community perspectives can ensure that future research is relevant and responsive to topics such as: 1) effects of CF modulator therapy on sex hormones; 2) effects of sex hormones on CF; 3) fertility; 4) pregnancy; and 5) sexual and reproductive health/mental health.
Drs. Holly Thomas, Rebecca Thurston, and their team developed a virtual mindfulness intervention for midlife and older women with low libido and found that it is feasible, acceptable, and appears to improve sexual distress as compared with an education control; these findings provide data that can be used to design a larger clinical trial.
Read more about their findings here: https://pubmed.ncbi.nlm.nih.gov/37353906/
Drs. Ashley Hill and Natacha De Genna qualitatively examined coping mechanisms and desired supports in pregnant and birthing Black and biracial adolescent and young adult women during the COVID-19 pandemic. Their team found that nearly half the interviewees reported mental health symptoms consistent with postpartum depression and that several were afraid to disclose their symptoms to a healthcare provider due to fear of child protective services involvement and their belief they would be treated unfairly because of their race.
Faculty member Dr. Sara Baumann used collaborative filmmaking to understand the mental health stressors and supports in the lives of youth during the Covid19 pandemic.
According to Drs. Jill Demirci and Michele Levine recent research, detection of postpartum anxiety in clinical settings can be improved through addition of the Postpartum Specific Anxiety Scale (PSAS) in routine screening. Timing of anxiety assessment should be considered between 6 to 8 weeks after birth.
New web guides have been developed for youth with epilepsy. These guides were created collaboratively between people with epilepsy, multidisciplinary physicians, and the Center for Young Women’s Health.
These guides cover topics such as:
